Already Participating?
If you are an existing Duchenne Registry participant, your account will automatically be transferred over to the new Duchenne Registry Mobile App, powered by THREAD (the vendor working with The Duchenne Registry & PPMD). You DO NOT need to pre-register below; you will receive an email invitation with a link to download the new mobile app. The email will include your Activation Code, which you will use to register within the app. Once you receive the email, please install and launch the app on your iPhone or Android phone. Tap “Join the Study” to begin the registration process. If you have any questions, do not receive your email invitation, misplace your Activation Code or need assistance in any way, please contact us at: or 1-888-520-8675.
Joining for the First Time?
If you are joining The Duchenne Registry for the first time, there are 3 simple steps to begin your participation:
  1. Complete the pre-registration form below.
  2. You will receive an email invitation with a link to download The Duchenne Registry Mobile App. The email will also include your Activation Code, which you will use to register within the app
  3. Install and launch the app on your iPhone or Android phone. Tap “Join the Study” to begin registration process.
*If you are registering for more than one participant, you will need to repeat the above steps with a unique email address for each participant.
Pre-Registration (New Registry Participants only):
Email *
Confirm Email *
Please read the agreement below.
If you would like to continue with the registration process, you will need to agree to the following:
  • Give your personal and contact information to THREAD™ (the vendor working with PPMD of this study who created this website).
  • Allow THREAD™ to confirm your identity by answering questions about yourself.
  • Allow THREAD™ to use and share your personal and contact information (such as your name, date of birth, email address, phone number, and home address) with PPMD.
  • The website’s Privacy Policy and Terms of Use.
  • Allow THREAD™ to store your personal and contact information for a minimum of 7 years. After that time your information will be destroyed.
  • You can change your mind and stop at any time during this initial screening process. If you change your mind contact the Duchenne Registry Coordinator at 1-888-520-8675.
  • By clicking the agreement button below, I understand and agree to continue in the screening process and authorize the use of my personal information as stated above.